
I remember asking one of my best friends if he was angry that when his wife was dying of cancer that life around them continued normally. What I meant by this question was whether he felt anger because the mail was still delivered, telemarketing agents still called, UPS still made deliveries, his neighbors walked their dogs as though nothing was any different. His response was very much like him, very existential. To wit, he said (and I am paraphrasing, BTW) that he knew that the world "outside" wouldn't stop or change because he and she were going through a horrible experience. I could not fully appreciate what he meant at the time, but I think I do now. Allow me to explain.
My niece has now had two Grand Mal seizures since her surgery. She continues to experience partial complex seizures (previously referred to as "Petite Mal") frequently. There are many possibilities why these seizures are happening, some more palatable than others. The good news in what seems like a bleak situation is that there are still other options: new medications just released, vagus nerve stimulation, deep brain stimulation. These were available before her surgery also, but she was adamant that she wanted this surgery and so it was done. Now, it is possible that other options will
have to be explored, if the surgery turns out not to be a success. It is still too early to make an assessment of its success because the brain is still healing. But, the fact is that seizures so soon after surgery increase the likelihood that she will continue to have them. She is, as one could imagine, very disappointed and frustrated. We can only wait to see what happens next.
As we wait, life continues. Migraines still hit (I had one yesterday), Christmas presents need to be wrapped (spent much of today doing this), and I wanted to get back on the ice after a two-week absence. So I did that on Friday, with new boots and blades. This is a challenging experience for most skaters, even more so when one has switched to a different skate brand, as I did. The boot fits well, but the blades definitely are too flat and must be re-sharpened. And, then there is the rocker. I feel like I am pitched forward, so I must constantly check my posture to compensate for this. At the beginning of the session on Friday, I complained to Coach J that I
hated my new skates, never should have purchased them, and was going to sell them on eBay. After Coach J left me to my own devices, I managed to get more comfortable (not confident, mind you) and left the rink thinking that all would be well when I got the blades re-done. This must be done ASAP.
This week, of course, holds much activity. I am looking forward to a skate/coffee/ gift exchange date with my BSB, lunch with a dear friend and her two children (to whom I am an "unofficial" aunt) so I can deliver the quilts I made them for Christmas, coffee and cookies on Christmas Eve with wonderful, loving friends who I adore beyond words, lunch with my college roommate and friend of 40 years in Auburn, and - most exciting - time with Dear Husband and doggies on Christmas Eve and Christmas Day. Between this activity, I will deliver gifts to friends and even skate on Tuesday (lesson with Coach J) and Wednesday, to share the ice with my BSB and another great skating buddy who is blowing through her ice dance tests like they were all a walk in the park. She has only five more tests until she gets her Gold medal in ice dancing. Amazing and inspirational!
It is my tendency (a.k.a., character flaw) to step in to solve my loved ones' problems. This can be overbearing sometimes, I imagine. I have to remind myself that our niece is, after all, 18 years old and can make her own decisions. But I feel compelled to try and help her and her mother make informed, thoughtful decisions, by providing them with data, alternatives, and resources. I must stop swooping down on them to take control, although every fiber of my being wants to do exactly that. Sometimes, one must wait until the door is opened to you and not just knock it down and barge in.
In the meantime, life does go on, despite the trauma and drama that seems to surround us right now. I must remember - "God grant me the strength to change the things I can, accept the things I cannot change and wisdom to know the difference."
Onward.